Some of you are aware, but most are not, that I have a bit of a heart condition. It's a condition that is actually quite common and most people live with it without having any real negative side effects. For me however, that is not the case. The condition is referred to as PVC's (Premature Ventricular Contraction). Simply explained, it is the occurrence of "extra" heart beats. The doctors are unsure of exactly what caused this condition to plague me, though they gave me a number of possible culprits; stress, caffeine, anxiety, sudden weight gain, fatigue and illness. (or any combination of all of the above).
For me, this started while I was pregnant with my oldest child. I was about 23 weeks along when the irregular heart beats began. Most people would describe the feeling of these extra heart beats as "a fluttering" or like their "heart skipped a beat". For me, it's much different. PVC's are not typically painful and don't usually last long. Most people only experience one or two extra beats a day and barely notice that anything is wrong. For me though, this just isn't the case. In fact, mine are so powerful and last so long that I have actually had to go to the emergency room to get my heart checked.
So, at about 23 weeks pregnant, all of the sudden I have this ridiculous pain in my chest, my heart feels like it's going to explode out of my chest. I let Danny drive me to the ER. Upon arrival I was immediately taken to a room and set up on a 12 lead heart monitor. I wasn't hooked up more than two minutes before the doctor rushed in, very panicked, watched me, watched the monitor and then stated that he needed to make some phone calls. After about 10 minutes he returned and told me and Danny that I was going to be airlifted to the hospital in Nashville. What?! What's wrong with my heart?! Is my baby okay?? They were more worried about my heart....
Five minutes later, I was being moved onto a special gurney and wheeled out to the helipad and loaded onto a Blackhawk helicopter. Roughly five minutes later, we were landing on the roof of Vanderbilt University hospital. (this is a 45-60 minute drive away from Fort Campbell, and Danny had to drive that night, poor guy).
They immediately took me to labor and delivery. I was not my calm, rational self at this point because no one was telling my anything. I was in an immense amount of pain and the doctors wanted to give me something to relieve the pain. (I am still unsure of what they gave me, but I wish I knew). Seconds after they administered the drug, my heart went even more crazy.
I could feel myself falling in and out of consciousness and I knew that something was terribly wrong, but I still didn't know or understand what was going on. I knew that they were hooking up monitors to keep an eye on my baby girl, but that was about it. And so far she seemed to be fine, which was great news.
The doctors ran many tests including an ECG and also did an ultrasound of my heart, but were left unsatisfied with the results. The PVC's eventually started to calm and they continued to monitor me (& Haley) in labor and delivery for a few more hours. After about six more hours in labor and delivery, I was transferred up to the cardiology unit. I was placed on a Holter monitor for the next 24 hours. They determined that I was suffering from sustained runs of multifocal PVC bigeminy, trigeminy and quadrigeminy. Big words, right? I feel your pain. There are four different named patterns of regularly occurring PVCs. Depending whether there are 1, 2, or 3 normal beats between each PVC, the rhythm is called bigeminy, trigeminy, or quadrigeminy. Unifocal PVC's are triggered from a single site in the ventricle, causing the peaks on the ECG to look the same. Multifocal PVC's arise when more than one site in the ventricles initiate depolarization, causing each peak on the ECG to have a different shape. If 3 or more PVC's occur in a row it may be called ventricular tachycardia. Meaning, these PVC's could cause cardiac death.
Well, I wanted to know what was wrong, right? Ummm, now I'm thinking I would prefer to be kept in the dark on what all that means... I mean, really, who wants to go around worrying that the PVC's they keep having could kill them?
So, what to do about them?? Well, the cardiologist suggested a Beta Blocker. Two catches with this treatment, the first, you can't be pregnant while taking this medication. Second, Beta Blockers can possibly make the condition worse. Worse?! The only thing worse would be death! Umm... I think I'll pass on that option Doc, but thanks for the suggestion. (little info, once you start taking a Beta Blocker, you have to be weaned off, you cannot just stop taking it as that could cause heart failure). This just keeps getting better....
So, we decided that we would just keep an eye on the PVC's for a while and re-evaluate at a later time. (when I wasn't pregnant).
Fast forward 3 years... I now have two kids and we're stationed in Germany. The PVC's are now causing me to pass out (from the pain), sometimes for hours at a time. This can't be good... After much coaxing from Danny, I finally returned to the doctor for some suggestions. I was apprehensive because of what I was told the last time and really didn't want to go because I felt like it was a waste of time, they weren't going to tell me anything I didn't already know.
This doctor ran an EKG and sure enough, PVC's, and the concern on her face was immediately evident. No life flight this time though. We sat in her office and she suggested the Beta Blocker. But, I received the same warning as before. Once it's started you cannot just stop taking it and there is a good chance that because pain medications such as Tylenol and Motrin cause my PVC's to get stronger, that the Beta Blocker will likely also have a negative side effect. Well, that settles it, no Beta Blocker for me! I am not taking that chance, no way! I don't know about all of you, but for me, death just isn't an acceptable side effect.
I have been living with these painful and obnoxious PVC's for over 12 years now. Most of the time I don't pay attention to them, but there are times that they demand my attention. Stress is the biggest trigger for me. They cause me to feel faint, nauseous and light-headed from time-to-time. Rarely now do they cause me to pass out, but thankfully I always know when that is about to happen so I can prepare by lying down. I have only fallen from passing out a couple of times. (I know, I know... that isn't good). I have good days and I have bad days. Some days I can barely function because of the pain associated with my PVC's. On those days, I recall very little and feel as if I am in a fog, everything is hazy and those are the days I dread.
There is no cure. There are things I can do to try and "manage" them, but I have tried all of those things and have been unsuccessful so far. I do not take pain meds unless absolutely necessary. I avoid caffeine. I try to ensure that I get plenty of sleep and try to avoid stress when possible.
Avoiding stress and anxiety is definitely difficult. This is one specific example of a huge trigger for me; With my recent return to the church, I have been put on the spot a couple of times and asked to offer a prayer. For anyone else this wouldn't be such a big deal, but I get nervous speaking in front of people (and especially around people I don't know very well). I don't know why, I just do. I want to be able to tell them "sure, I'd be happy to offer the prayer", but I can't. I am physically incapable of standing once I get that nervous/anxious feeling. I will pass out. I will have chest pains so severe I won't be able to think straight, let alone speak. I am not able to overcome this obstacle at this time in my life and that saddens me. I am nervous that they will one day ask me to give a talk during Sacrament meeting. I have such a hard time declining when asked, but I know that the end result would be me in an ambulance.
I have come to terms with the fact that there is a real possibility that one of these days, these PVC's could cause my heart to go into cardiac arrhythmia. (I could die, which would be bad). Because of this, I make a conscience choice each day to do my best and to be the best person I can be. Life is short and unfortunately, mine may be shorter than I want. So I try to enjoy the time I have been given each and every day. Some days are definitely better than others. In the end, I just want to see my kids happy and watch them enjoy life. I want to see my friends happy and to help them however I can. I want to spend time with my family, because family is so important. I want to treasure each and every moment I have with my family and friends because I don't know if I'll be given a tomorrow... But I try not to dwell on that thought. I really try to focus on the here and now and to be thankful for what I do have. I have so many things to be grateful and thankful for, so many I can't count them all.
I just want to end by saying that I am so very blessed to have such amazing family and friends, whom I love so much. I know that there are so many of you who would do anything you could to help me and my family, and many of you already have helped so much. Thank you. I appreciate all of the love, and support, from each and every one of you.